This is a story about one little girl’s journey with a medical condition called craniosynostosis. This is about decisions we made as a family, choices we were faced with as a couple and emotional and physical scars we each carry individually. I hope it will help many other people learn about this big scary word and what it means for 1 in 2000 children born every day throughout the world. I also hope that with awareness, money will be raised…. allowing for more research on surgical outcomes and craniosynostosis causes. There’s no reason people shouldn’t know about this condition – even if they call it ‘cranio something or other’. Sometimes craniosynostosis is referred to as just ‘synostosis’ or ‘cranio’ too. Please feel free to pass along this link. Share it with your friends and family and encourage them to do the same. Thank you for sharing in Ava’s Journey.
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